Skyler looks forward to being placed with her ECAD Service Dog, who will be specially trained to wake her up at night if her ventilating machine is not working properly. Skyler’s dog will improve the quality of her life and help Skyler fulfill her dream of gaining greater independence.
Meet ECAD Client Skyler Berry
Hello, my name is Skyler Berry. I am 20 years old and graduated from Splendora High School. I then went to college at Aveda Institute for Cosmetology. I enjoy riding my horse, painting, fashion, wildlife and hanging out with my friends and family.
I was born with a rare condition called Congenital Central Hypoventilation Syndrome (CCHS). In short, this syndrome affects my breathing, my brain does not respond to carbon dioxide (C02). CCHS causes a person to take shallow breaths, especially during sleep, resulting in a shortage of oxygen and a buildup of CO2. This is where my life-long medical journey began at just eight hours old, where I was intubated and placed on mechanical ventilation to survive. At three weeks old, a tracheostomy had to be surgically placed for long term support. This is where my parents’ journey began to try to find a less invasive way for me to survive and to have the best possible quality of life.
After traveling to different states and having numerous tests done, I ended up having diaphragmatic pacers implanted. The pacers shocked me and was sometimes painful, but I knew it would be worth being free of the one thing that made me noticeably different from others.
Although, my trach was finally removed when I was fourteen, I still use a Bi-Pap nightly. Since I have suffered hearing loss over the years and do not always hear my alarms, my dog will be trained to wake me up. With my ECAD Service Dog by my side, I will be able to live my life safely and independently while pursing my dreams.
Thank you for your donations made in my honor to help me and other people like me. We greatly appreciate your generous support.
Thank you for your generous gifts to ECAD in honor of Skyler Berry.Donations are 100% tax-deductible as allowable by law. If your employer has a Matching Gift program,
please complete the form and mail it to ECAD, P.O. Box 831, Torrington, CT 06790.